Senior Huntington’s Disease Specialist (SHDS)

  • Full time
  • £34,976 – £38,074
  • Highland region - Hybrid working model (office & home-based). Base will be negotiated depending on location of successful applicant
  • Closing 19th December 2022

  • Advertised from 25th November 2022
  • 36 hours


Are you looking for a role in which you will positively impact the lives of HD families in your community? A role that enables you to make a real difference and feel valued by the organisation you work for?

Scottish Huntington’s Association Vision and Values

Our vision is that every family in Scotland impacted with Huntington’s disease will have access to expert, committed, informed, honest and practical support as they navigate their complex HD journey.

Our core values guide how each one of us works in our individual day to day job: -

  • Empowering individuals, families to meet the challenges of Huntington’s disease
  • Supporting people living with Huntington’s disease in a way that promotes respect, dignity and self-worth and recognises that they have an important role to play in their community
  • Passionate about the right of individuals to make choices about matters that affect their lives
  • Flexible and designed around the individual needs of people living with Huntington’s disease

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to the care management and support of individuals and families whose lives are impacted by Huntington’s disease, an incurable neurological condition with severe and complex physical, mental and cognitive symptoms.

Due to a vacancy in the service an opportunity has arisen to join the Scottish Huntington’s Association Highland Adult Clinical Services serving families in the Highlands. Providing the opportunity to manage a bespoke Specialist Huntington’s disease service within our growing Scottish Charity which will offer specialist assessment, one to one emotional support, facilitation of Huntington’s disease care management and advice & information to families impacted by Huntington’s Disease (HD) Working in partnership with local Health and Social Care teams, and with the support of the Grampian Genetics Service, the Adult Clinical Service for the Highlands also provides advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

We are looking for someone who is enthusiastic, motivated and who will have a positive influence on the quality of life for individuals and their families who are impacted by HD. Previous experience of working with Huntington’s disease is preferred but not essential, we will provide you with all the condition-specific knowledge you need. The successful candidate should have the ability to work autonomously using their own initiative in this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent timekeeping and caseload management skill.

The Scottish Huntington’s Disease Association invites applications from professionals who have a background in allied health, nursing or social work, and who have a valid, current professional qualification & membership with their professional body.

A substantial level of post-basic experience is desirable. Community based practice knowledge and a clean current driving licence and use of a car is essential.

Join us and you will find a values-driven organisation, founded by families for families. We are recognised at national and international levels for our expertise in supporting the Huntington’s disease community through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors and a Financial Wellbeing Service.

The successful candidate will be subject to an enhanced disclosure.

Application notes

Further information and an electronic application pack can be obtained from: David McNiven, Admin Officer, Scottish Huntington’s Association, Business First, Burnbrae Road, Linwood Industrial Estate, Paisley, PA1 2FB. T: 0141 848 0308 E:

We encourage informal enquiries which can be made to Liz McConnell, Team Leader, at or by calling Liz on 07916062120

Closing date for applications: Monday, 19 December 2022 at 5.00pm

Interview date: Monday 09 January 2023

Interviews and induction processes for successful candidates will take place via Microsoft Teams

SHA is a registered Charity and is committed to promoting equal opportunities in employment. Scottish Charity No; SCO100985