MND Scotland’s vision is a world without MND. Until that day comes we’re on a mission to ensure everyone affected by MND across the country has our support every step of the way. Our current three-year strategy builds on the achievements of the last forty years and also seeks to correctly position MND Scotland for a sustainable future to ensure we deliver our mission. We’d like your help to do that.

We are recruiting three new Trustees to join our Board. Whilst we’re always interested in receiving applications from a wide range of backgrounds, at this time we’re particularly keen to hear from individuals with the skills to fulfil the following roles;

• Treasurer,
• Fundraising Trustee
• Research Trustee.

As a Trustee you will play an important role in setting the strategic direction of the charity whilst providing support, guidance and constructive challenge to the Board and the CEO. You will also act as an ambassador for MND Scotland and help us ensure that everyone right across the country knows of the work we do and how we can help them if they need us.

Becoming one of our Trustees is not something to be undertaken lightly. It takes commitment, passion and dedication. You may be pushed out of your comfort zone on occasion or indeed frequently. If that makes you uncomfortable then you’re probably not who we are looking for. If however, you are looking to help make a real difference to people’s lives and to grow both personally and professionally then we’d be really keen to hear from you, particularly if you have a background in any of the specified areas we are looking for.

Previous Board experience would be great but it’s not essential. You don’t have to have a personal link to MND. Nor do you have to have a charity background, however, this may be beneficial. What is much more important is your passion, ability to think strategically and your desire to get involved and make a difference. It’s also important that you know MND Scotland has a strong commitment to embracing diversity and inclusion.

Are you looking for a role in which you will help to improve the lives of families across Scotland? Do you have the skills and determination to meet and exceed fundraising goals alongside your colleagues?

If you are someone with imagination, talent and expertise, we want to hear from you. You will have a proven ability to build trusting relationships and inspire further support towards the charity, as well as good research and record keeping skills.

It’s an exciting time for the charity with the launch of Standing Tall: A Strategy for Growth 2023 – 2028 to transform the care and support of Huntington’s families, expand specialist services and deepen involvement in clinical research and trials.

This follows two years of significant expansion in our specialist teams, growth in funding, a rise in media engagement, majority parliamentary support for our work, and the success of our ground-breaking Dance 100 events in Glasgow.

The Income Generation team is playing a key role in the delivery of our new strategy and our Community Fundraising Officers will enable us to take that vital next step.

The successful applicant will join an ambitious and hard-working organisation dedicated to families living with the challenges of Huntington’s disease, a devastating disease that changes the brain and causes severe and complex physical, mental and cognitive symptoms.

You will find a values-driven organisation, founded by families for families and recognised at national and international levels for its expertise and support delivered through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors and Financial Wellbeing Officers.

We are looking for a Philanthropy Executive to join an experienced, high performing and ambitious team which is central to supporting the delivery of Marie Curie’s strategic direction. This is a fantastic opportunity to grow your experience in fundraising by working with a mixed portfolio of major gift supporters made up of trusts and foundations and individuals.

You will manage a portfolio of both current and prospective trusts and foundations and individual donors and will be empowered to build your own relationships with our supporters. You will also work closely with the Philanthropy Manager and Senior Volunteers to secure philanthropic gifts. You will collaborate with peers and fellow team members, Philanthropy and Partnerships colleagues and other teams across Marie Curie, to provide the best supporter experience and produce compelling applications for funding.

You will have excellent relationship building and communication skills, with the ability to produce consistently high quality, imaginative and compelling written materials. The ideal candidate will be able to demonstrate how to apply current skills for use with a philanthropic audience, understand the process of soliciting and stewarding philanthropic donors and how to utilise a database effectively for fundraising purposes

This is a fantastic opportunity to join an experienced and supportive team to learn and grow your fundraising career.

What we are looking for:

• A highly motivated fundraiser with superb relationship building skills and the ability to network effectively.
• Excellent written and oral communication skills – confidence in dealing with people at all levels, demonstrating professionalism and diplomacy.
• Ability to produce consistently high quality, imaginative and compelling written materials; mailings, proposals and letters.
• Strong organisation and attention to detail, with the ability to prioritise activities.

What’s in it for you:

• Continued access to NHS Pension Scheme (subject to eligibility)
• Marie Curie Group Personal Pension Scheme
• Season ticket loan
• Loan schemes for bikes; computers and satellite navigation systems
• Continuous development
• Industry leading training programmes
• Employee Assistance Programme
• Flexible Working

Please click here to view our full job description

Marie Curie is committed to its values, which underpin our work. We take stringent steps to ensure that the people who join our organisation through employment or volunteering, are suitable for their roles and are committed to safeguarding all our people from harm. This includes our staff, volunteers and all those who use or come into contact with our services. We are dedicated to creating not just a safe place to work but also a supportive and rewarding one.

We are committed to a world where everyone can thrive and fulfil their potential. We are devoted to the social justice imperatives and organisational benefits of full diversity, inclusion and equity in the workplace, and are a Stonewall champion. We actively encourage and welcome applications from candidates of diverse cultures, perspectives and lived experiences.

Agencies need not apply.

Are you an experienced health or social care professional who has a passion to improve the quality of life and experience of those living with a neurological condition? Then this challenging and extremely rewarding role offers the opportunity to share your expertise, develop your clinical practice and work with a team of

like-minded individuals who support the Huntington’s disease community.

You would join our Ayrshire & Arran Service as a Huntington’s Disease Specialist, in a role funded by NHS Ayrshire & Arran Health and Social Care Partnerships.

About the role

Our Huntington’s Disease Specialists facilitate quality care for those impacted by Huntington’s disease and their families throughout Ayrshire & Arran. You will focus on case management, specialist assessment, anticipatory care planning, and coordination of support. This requires partnership working with, and signposting to, appropriate professionals/agencies. Previous experience of working with Huntington’s disease is desirable, however full training will be provided.

About you

• You will have an allied health profession, nursing or social work background and current professional body membership.

• You will be a skilled communicator with good listening and inter-personal skills.

• You will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals on your caseload.

• You will have a current UK driving licence and access to a car.

• You will have extensive experience of managing the conflicting priorities of a complex, community-based caseload.

• You will be able to demonstrate your ability to work autonomously as an integral part of a small team.

We are open to applicants with a wide range of experience. Applicants who consider themselves to have relevant experience over and above that requested in the Job Description may therefore apply.

About us

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to families impacted by Huntington’s disease, a devastating hereditary, neurodegenerative condition that causes severe and complex physical, mental and cognitive symptoms. There are currently 800 people in Scotland with symptoms of Huntington’s disease and a further 3200 believed to be at risk of developing the condition.

The successful candidate will join Scottish Huntington’s Association at an exciting time as we implement Standing Tall: A Strategy for Growth 2023 – 28 to transform the care and support for Huntington’s families throughout Scotland. We are an ambitious and hard-working organisation, recognised at national and international levels for our expertise and approach.

What we offer

• Salary of up to £34,976 per annum (pro rata)

• 18-hour working week

• Generous 32 days annual leave plus 5 fixed public holidays on appointment (pro rata)

• Increasing annual leave days to recognise long service (after 5 years)

• Contribution pension scheme

• An extended and thorough induction period with ongoing commitment to your training and CPD opportunities

• A flexible, hybrid approach to work

• Regular, clinical supervision

• Attention to facilitating peer support with the HD Specialist team throughout Scotland

For an informal chat about the role, please contact Linda Lucas (Team Leader) on 0141 848 0308.