Scottish Huntington's Association
Scottish Huntington's Association

Charity registered in Scotland SC010985

Scottish Huntington’s Association (SHA) is a Scottish charity that was established by families living with Huntington’s disease (HD) in the late 1980s. Experiencing directly the dearth of services available to them, the organisation pursued the goal of setting up specialist family support services and this ultimately blossomed into the development of an extensive network of specialist services.

Current vacancies

Huntington's Disease Specialist (Lothian Service)

  • Full time
  • £27,853 – £32,645
  • Western General Hospital, Edinburgh
  • Closing 31st January 2020

We have a new vacancy for a Huntington’s Disease Specialist. An exciting opportunity to join our existing team and growing Scottish charity which offers specialist assessment, advice, information and support to families affected by Huntington’s disease (HD) and professionals involved in their care.

Previous experience of working with Huntington’s disease is preferred but not essential; most of our staff have a background in mental health, physical disability, social work, neurology or palliative care. We will provide you with all the specialist knowledge you need. What we are looking for is someone who is enthusiastic and motivated and can have a positive impact on the quality of life of people living with the disease. You will also need to be able to work autonomously.

SHA invites applications from enthusiastic professionals to work autonomously in this challenging and innovative post. Candidates require a qualification in Nursing (1st level), Social Work, Occupational Therapy or other relevant field. A substantial level of post-basic experience is desirable. Community-based practice knowledge is essential. A clean current driving licence and use of a car is essential.


Huntington's Disease Specialist

  • Part time
  • £27,853 – £32,645 pro-rata
  • Irvine
  • Closing 29th January 2020

The HDS will be a member of the Ayrshire Huntington’s disease specialist service based in the Douglas Grant Rehabilitation Centre, Ayrshire Central Hospital, Irvine, whilst also being part of the wider SHA multidisciplinary teams. The service covers all geographical areas within Ayrshire & Arran. Operational areas of the service include the direct provision of support, advice, assessment and care management planning for individuals and their families whose lives are impacted by HD, promotion of a self-help model amongst families and increasing awareness of Huntington’s disease (HD) and raising awareness of the HD Care Framework ensuring equality of care across Lothian.

The primary function is to facilitate quality care for those with HD and their families through specialist assessment, planning, coordination, implementation and signposting to appropriate professionals/ agencies. The post holder will also provide up to date HD training sessions and information regarding current clinical trials and research to all H&SCP’s, other professional and voluntary bodies and family members. Caseloads can be complex and emotionally challenging but equally rewarding. In addition the HDS will work with the Senior HD Specialist and wider teams in supporting any new developments within the Ayrshire service and across the Adult Clinical Service.

Closed vacancies
This vacancy has now closed

Top job! Head of Fundraising

  • Full time
  • £41,022 – £45,948
  • Paisley
  • Closing 10th November 2019

We seek an experienced fundraising lead with a track record in creating, implementing and reviewing a fundraising strategy. You will have experience in leading a fundraising team, providing coaching, mentoring and support to enable fundraisers to achieve their individual and team targets. You will have a knowledge of charities working in the health and social care sector and a proven track record in securing funding from individual giving, community fundraising, corporate giving and trusts and grants. You will also have experience of statutory funding through service level agreements and tenders.

Funding for this post is provided by Scottish Huntington’s Association.

All posts are subject to a Disclosure Scotland PVG or Police Act check.



Volunteer Fundraising Co-ordinator


3rd September 2019

The Scottish Huntington’s Association (SHA) exists to tackle the inequalities in health and social care provision, ensure families are better connected to support and services and increase the capacity of other agencies through training and education. Fundraising Co-ordinator… Read more