Scottish Huntington's Association
Scottish Huntington's Association

Charity registered in Scotland SC010985

Scottish Huntington’s Association (SHA) is a Scottish charity that was established by families living with Huntington’s disease (HD) in the late 1980s. Experiencing directly the dearth of services available to them, the organisation pursued the goal of setting up specialist family support services and this ultimately blossomed into the development of an extensive network of specialist services.


Current vacancies

Financial Wellbeing Officer

  • Part time
  • £30,716 pro-rata
  • Hybrid Model: Home based / office based
  • Closing 30th September 2022

Are you motivated to make a positive change to the lives of people who live in families that are impacted by the devastating, neurological condition Huntington’s disease? This is an exciting opportunity to become part our National Financial Well- Being Service (FWS.) You will work closely with the FWS Lead and two other FWO’s to provide invaluable financial support to people living in HD families. The post holder will work in an integrated style with SHA’s Huntington’s disease (HD) Specialists, our national Specialist Youth Service including professional staff from a wide variety of backgrounds and multiple external agencies.

We are looking for someone who is enthusiastic, motivated and who will have a positive influence on the quality of life for individuals and their families impacted by Huntington’s disease (HD) by managing and delivering a high quality Financial Wellbeing & Energy Advice service including welfare rights; debt advice; energy advice and financial planning & products.

The successful candidate should be able to work autonomously in this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent time keeping and caseload management skills. A substantial level of financial work experience is essential. This is a community post, therefore a clean, current driving licence and use of a car complete our list of essential requirements.

Region: National Post - South West Scotland

The successful candidate will be subject to an enhanced disclosure check.

Shortlist

Huntington's Disease Specialist

  • Full time or Part time
  • £31,615 – £34,976
  • Raigmore Hospital, Old Perth Road, Inverness, IV2 3UJ Hybrid working model (office and home-based)
  • Closing 24th October 2022

Scottish Huntington’s Association (SHA) is the only charity in Scotland dedicated exclusively to the care and support of individuals and families whose lives are impacted by Huntington’s disease, an incurable neurological condition with severe and complex physical, mental and cognitive symptoms.

An exciting opportunity has arisen to join our Adult Clinical Services Team serving families in the Highlands. The role holder will provide provide care management, specialist assessment and emotional support to individuals and their families. Working in partnership with local Health and Social Care teams, and with the support of the Grampian Genetics Service, the Adult Clinical Service for the HIghlands also provides advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

The successful candidate will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals and families they support. A background in allied health, nursing or social work, and a current professional body membership, is essential. Experience of working with Huntington’s disease is preferred, however we will provide you with all the condition-specific knowledge you need.

You should be able to work autonomously in this challenging and rewarding position. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a current driving licence and the use of a car complete our list of essential criteria. The successful candidate will be subject to an enhanced disclosure check.

At Scottish Huntington’s Association, you will find a values-driven organisation, founded by families for families. We are recognised at national and international levels for our expertise in supporting the Huntington’s disease community through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors and a Financial Wellbeing Service.

Shortlist
Closed vacancies
This vacancy has now closed

Specialist Youth Advisor

  • Full time
  • £28,694 – £30,399
  • North East Scotland-Including Highlands, Grampian and Tayside
  • Closing 25th June 2021

Are you motivated to make a positive change to the lives of children who are impacted by the devastating, neurological condition, Huntington’s disease within their family? Could you provide the support needed to cope with the unique and complex challenges they face each day? If so, an exciting opportunity has arisen to join Scottish Huntington’s Association (SHA) Youth Service as Specialist Youth Advisor supporting our vulnerable children and families throughout North/ East Scotland.

The Scottish Huntington’s Association (SHA) Youth Service works with children and young people aged 8 to 25, delivering a person-centred approach including psychoeducation, information and advice, peer support and respite opportunities.

We seek an exemplary individual to join us as a Specialist Youth Advisor for the North/East. This is a full time post: 36 hours per week with some out of hours and periodic weekend working. In addition to a competitive salary of £28,694 - £30,399, you will benefit from flexible working, a generous leave allowance of 37 days (25 days annual leave and 12 days public holidays) and a competitive pension.

As an SHA Specialist Youth Advisor, you will provide lifeline support for young people across the north east of Scotland, including Highlands, Grampian and Tayside. The Youth Service team manages a complex caseload while delivering one to one support sessions and developing group work sessions for ages 8-12, 13-17 and 18 years +. In addition, our Specialist Youth Advisors provide support to practitioners and deliver respite opportunities for our young people through, for example, residential trips and our annual summer camp.

A proven ability to build trusting relationships and empower children and young people is essential, and experience of child and adolescent mental health difficulties, young carer issues and child protection is advantageous.

You will work from home or from our base in the North East Scotland Regional Genetics Centre in Aberdeen, with regular travel throughout Highland, Grampian and Tayside. Home working remains in place as a result of Covid-19 restrictions. However, moving forward, as restrictions lift, team members will soon be spending some of their time at the workplace too and will be carrying out face to face visits.

Huntington’s disease (HD) is caused by a hereditary gene fault that leads to severe physical and psychological symptoms. There is no cure and its devastating impact is compounded further by the reality that each child of a parent with Huntington’s is at 50% risk of inheriting the disease.

SHA is the only charity in Scotland dedicated exclusively to supporting people whose lives are impacted by this devastating disease. It was founded by families for families, and you will find a values-led organisation, work alongside colleagues with unique insights and expertise, and discover how SHA continues to be inspired and driven by the families we serve.

Shortlist
This vacancy has now closed

Fundraising Officer

  • Full time or Part time
  • £24,379 – £26,963
  • Home working covering North East Scotland
  • Closing 27th September 2021

Are you motivated to make a positive change to families who are impacted by the devastating, neurological condition, Huntington’s disease? Do you have the skills and determination to meet and exceed fundraising goals alongside your colleagues?

If so, an opportunity has arisen to join Scottish Huntington’s Association (SHA) as a Fundraising Officer, responsible for building relationships with existing and potential new supporters in the North East of Scotland.

You will support our small and dedicated team in managing a portfolio of community, corporate and individual relationships whilst identifying prospective new contacts.

This post is being offered full time or part time, you will benefit from flexible working, a generous leave allowance of 37 days (25 days annual leave and 12 days public holidays) and a competitive pension.

You will have a proven ability to build trusting relationships and inspire further support towards the charity, as well as good research skills and record keeping.

You will be home-based with travel expected throughout your territory and occasionally to National Office in Paisley.

Huntington’s disease (HD) is caused by a hereditary gene fault that leads to severe physical and psychological symptoms. There is no cure and its devastating impact is compounded further by the reality that each child of a parent with Huntington’s is at 50% risk of inheriting the disease.

SHA is the only charity in Scotland dedicated exclusively to supporting people whose lives are impacted by this devastating disease. It was founded by families for families, and you will find a values-led organisation, work alongside colleagues with unique insights and expertise, and discover how SHA continues to be inspired and driven by the families we serve.

Shortlist
This vacancy has now closed

Financial Controller

  • Part time
  • £35,464 pro-rata
  • Linwood
  • Closing 4th March 2022

Scottish Huntington’s Association (SHA) is a vibrant, values-led organisation founded by families for families impacted by Huntington’s disease (HD).

We are looking for an experienced part-time Financial Controller to join our small but busy team based at SHA’s National Office in Paisley. Your duties will involve the management of the finance-related processing tasks, such as income, expenditure, expenses, payroll and management accounts administration.

With at least three years’ experience in a similar role, you will have a good working knowledge of SAGE Accounts, IRIS payroll and Excel or similar financial software packages.

Training and a full induction programme will be provided, and your 18-hour weekly working pattern is negotiable.

For now, as the pandemic continues, you will be provided with a laptop to support a blend of home and socially-distanced Covid-19 compliant office working.

This is an exciting opportunity to share your skills and expertise as part of a unique organisation dedicated to transforming the lives of families facing the challenges of this currently incurable neurological disease every day.

Job Outline/Description

The Financial Controller is accountable for delivering an accurate trail of company income and expenditure and presenting the results on a monthly basis in an excel spreadsheet format for the Senior Leadership Team (SLT) and Board Members. This work entails a close working relationship with two other members of the SHA Finance team.

You will be responsible in submitting and gathering accurate year end reports for submission to the auditors and working alongside the audit team and Finance team to produce an accurate account of SHA’s financial activities for the year.

You will be responsible for working with SLT and all budget holders to produce annual budgets to be submitted to the Board for approval.

The duties above are a fundamental requirement of the role however you will be required to assist members of the Finance team, SLT and budget holders with any finance expertise that may require your input.

In your capacity you will be a valued member of the operation and be expected to provide accurate financial information to help SHA staff make an accurate assessment of any financial requirements that may arise.

Shortlist
This vacancy has now closed

Huntington’s Disease Specialist - Ayrshire

  • Part time
  • £31,615 – £34,976 pro-rata
  • Douglas Grant Rehabilitation Centre, Ayrshire Central Hospital, Irvine, KA12 8SS Hybrid working model therefore can be home-based at times
  • Closing 28th March 2022

Scottish Huntington’s Association is the only organisation in Scotland to exclusively support individuals, and their families, whose lives are impacted by Huntington’s disease. Recognised as one of the world leaders in HD Care, we have an exciting opportunity for an experienced health and social care professional to join our team!

Due to service expansion, we have a vacancy for a part-time Huntington’s disease Specialist to join our Ayrshire & Arran HD Specialist Service. The team provide care management, specialist assessment and regular emotional support to individuals, and their families, throughout Ayrshire. The specialist service works in partnership with, and provides training and education to, local Health and Social Care teams, professionals and voluntary agencies involved in all aspects of HD care.

We are looking for someone who is enthusiastic, motivated and who will have a positive influence on the quality of life of the individuals on their caseload.

Scottish Huntington’s Association invites applications from people from an allied health professional, nursing or social work background and you must have a current professional body membership. Previous experience of working with Huntington’s disease is preferred, but not essential. We will provide you with all the condition-specific knowledge you need.

The successful candidate should be able to work autonomously in this challenging and innovative post. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a clean, current driving licence and the use of a car complete our list of essential criteria.

The successful candidate will be subject to an enhanced disclosure check.

Shortlist
This vacancy has now closed

Financial Well-Being Officer – South West Scotland

  • Part time
  • £30,716 pro-rata
  • Hybrid Model: Home based / Office based
  • Closing 15th April 2022

Are you motivated to make a positive change to the lives of people who live in families that are impacted by the devastating, neurological condition Huntington’s disease? This is an exciting opportunity to become part our National Financial Well-Being Service (FWS.) You will work closely with the FWS Lead and two other FWO’s to provide invaluable financial support to people living in HD families. The post holder will work in an integrated style with SHA’s Huntington’s disease (HD) Specialists, our national Specialist Youth Service including professional staff from a wide variety of backgrounds and multiple external agencies.

We are looking for someone who is enthusiastic, motivated and who will have a positive influence on the quality of life for individuals and their families impacted by Huntington’s disease (HD) by managing and delivering a high quality Financial Wellbeing & Energy Advice service including welfare rights; debt advice; energy advice and financial planning & products.

The successful candidate should be able to work autonomously in this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent time keeping and caseload management skills. A substantial level of financial work experience is essential. This is a community post, therefore a clean, current driving licence and use of a car complete our list of essential requirements.

The successful candidate will be subject to an enhanced disclosure check.

Shortlist
This vacancy has now closed

Financial Wellbeing Service Lead

  • Full time
  • £31,614 – £34,009
  • Home Based - South East Scotland
  • Closing 14th April 2022

Are you motivated to make a positive change to the lives of people who live in families that are impacted by the devastating, neurological condition Huntington’s disease? This is an exciting opportunity to become part our National Financial Well-Being Service (FWS.) With responsibility for overseeing the day to date operations of the FWS, you will work closely with multiple stakeholders – these include our team of Huntington’s disease (HD) Specialists, our national Specialist Youth Service and multiple external agencies to provide invaluable financial support to people living in HD families. As Financial Well-Being Service Lead, you will provide an integral role in the SHA Extended Leadership Team. You will be responsible for providing leadership, support and supervision to a team of 3 FW advisors, you will also have your own caseload.

We are looking for someone who is enthusiastic, motivated and who will have a positive influence on the quality of life for individuals and their families impacted by Huntington’s Disease (HD) by managing and delivering a high quality Financial Wellbeing & Energy Advice service including welfare rights; debt advice; energy advice and financial planning & products. The post holder will ideally have experience in service management as well as mentoring & supporting others in the advice sector.

The successful candidate should be able to work autonomously in this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent time keeping and caseload management skills.

Previous experience of working with Huntington’s disease is desirable but not essential, a substantial level of financial work experience is essential. This is a community post, therefore a clean, current driving licence and use of a car complete is also an essential requirement.

The successful candidate will be subject to an enhanced disclosure check.

Shortlist
This vacancy has now closed

Specialist Youth Advisor

  • Full time
  • £29,842 – £31,615
  • Home Based with regular travel throughout Greater Glasgow & Clyde, Lanarkshire, Ayrshire & Arran, and Dumfries & Galloway.
  • Closing 29th April 2022

Are you motivated to make a positive change to the lives of young people who live in families that are impacted by Huntington’s disease a devastating, hereditary, genetically transmitted neurological condition? If so, an exciting opportunity has arisen to join Scottish Huntington’s Association (SHA) Youth Service as a Specialist Youth Advisor supporting vulnerable children and families throughout South/ West Scotland.

SHA’s Youth Service works with children and families aged 8-25 to affect positive change for our young people and families, we focus on a person-centred approach to managing HD including psychoeducation, information and advice, peer support and respite opportunities. The Specialist Youth Advisor is a pivotal role within the South/West, and will provide a vital link in supporting young people in this region, in line with SHA’s strategic aims.

SHA Youth service are seeking an exemplary individual who will be responsible for managing their own complex caseload and delivering one to one support sessions in the South/West region; developing group work sessions for ages 8-12, 13-17 and 18+; providing support to practitioners; alongside providing respite opportunities at residentials and summer camp.

The post holder will need to be highly organised and have the proven ability to build trusting relationships, to empower children and young people to manage the complexities of living with HD, and their own genetic risk. Experience of child and adolescent mental health difficulties, young carers’ issues and child protection is advantageous.

The successful candidate should be able to work autonomously in this challenging and innovative post. Good listening, communication and interpersonal skills are essential. This is a community post, therefore a clean, current driving licence and use of a car complete our list of essential requirements.

This post will involve some out of hours and periodic weekend working. we offer benefits including flexible working practices, a generous leave allowance totalling 37 days (25 days Annual leave and 12 days public holidays) and a competitive pension.

The successful candidate will be subject to an enhanced disclosure check.

Post is initially funded for 12 months, with the expectation to extend upon securing additional funding.

Shortlist
This vacancy has now closed

Financial Wellbeing Officer

  • Full time
  • £30,408
  • Hybrid Model: Home based /office based (Edinburgh)
  • Closing 25th May 2022

Are you motivated to make a positive change to the lives of people who live in families that are impacted by the devastating neurological condition Huntington’s disease? This is an exciting opportunity to become part our National Financial Wellbeing Service (FWS.) You will work closely with the Financial Wellbeing Service Lead and two other FWO’s to provide invaluable financial support to people living in HD families. The post holder will work in an integrated style with the charity’s Huntington’s disease (HD) Specialists, our national Specialist Youth Service and professional staff from a wide variety of backgrounds and multiple external agencies.

We are looking for someone who is enthusiastic, motivated and who will have a positive influence on the quality of life for individuals and their families by managing and delivering high quality financial wellbeing and energy advice service including welfare rights; debt advice and financial planning and products.

The successful candidate should be able to work autonomously in this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent time keeping and caseload management skills. A substantial level of experience in the advice sector is essential. This is a community post therefore a clean, current driving licence and use of a car are also required.

The successful candidate will be subject to an enhanced disclosure check.

Shortlist
This vacancy has now closed

Huntington's Disease Specialist

  • Part time
  • £31,615 – £34,976 pro-rata
  • Hybrid working model (office and home-based) - Greater Glasgow & Clyde.
  • Closing 11th July 2022

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to the care and support of individuals and families whose lives are impacted by Huntington’s disease, an incurable neurological condition with severe and complex physical, mental and cognitive symptoms.

We have a vacancy for a part-time Huntington’s Disease Specialist to join our Greater Glasgow and Clyde Service which provides provide care management, specialist assessment and emotional support to individuals and their families. Working in partnership with local Health and Social Care teams, the service also provides advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

The successful candidate will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals and families they support. A background in allied health, nursing or social work, and a current professional body membership, is essential. Experience of working with Huntington’s disease is preferred, however we will provide you with all the condition-specific knowledge you need.

You should be able to work autonomously in this challenging and rewarding role. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a current driving licence and the use of a car complete our list of essential criteria. The successful candidate will be subject to an enhanced disclosure check.

At Scottish Huntington’s Association, you will find a values-driven organisation, founded by families for families. We are recognised at national and international levels for our expertise in supporting the Huntington’s disease community through a nationwide network of HD Specialists, Specialist Youth Advisors and a Financial Wellbeing Service.

Shortlist
This vacancy has now closed

Financial Wellbeing Officer

  • Full time
  • £30,408
  • Hybrid working – home-based/office-based (Aberdeen Royal Infirmary)
  • Closing 8th July 2022

Are you motivated to make a positive change to the lives of people who live in families that are impacted by the devastating neurological condition Huntington’s disease (HD)?

This is an exciting opportunity to join our national Financial Wellbeing Service (FWS). You will work closely with Service Lead and two other Financial Wellbeing Officers to provide invaluable financial support to people living in HD families. You will also work in an integrated style with the charity’s HD Specialists, Youth Advisors and professional staff from across the organisation and multiple external agencies.

We are looking for someone who is enthusiastic and motivated to have a positive influence on the quality of life for individuals and their families through the management and delivery of a high quality financial wellbeing service. This includes providing specialist advice on welfare rights, debt management, energy use and future planning.

The successful candidate will have a substantial level of experience in the advice sector and the confidence and knowledge to work autonomously in this challenging and rewarding role. Good listening, communication and interpersonal qualities are essential, as are excellent time keeping and caseload management skills. This is a community post therefore a clean, current driving licence and use of a car are also required.

The successful candidate will be subject to an enhanced disclosure check.

Shortlist
This vacancy has now closed

Senior Huntington’s Disease Specialist

  • Part time
  • £34,976 – £38,074 pro-rata
  • Dumfries and Galloway, Home and Office base TBC
  • Closing 25th August 2022

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to the care and support of individuals and families whose lives are impacted by Huntington’s disease, an incurable neurological condition with severe and complex physical, mental and cognitive symptoms.

In line with our commitment to ensuring all families have access to the specialist services they need, we are expanding our services in Dumfries and Galloway and are now seeking a part-time Huntington’s Disease Specialist.

The successful applicant will work alongside families impacted by Huntington’s disease to provide a bespoke Specialist Huntington’s disease service which includes specialist assessment, one to one emotional support, facilitation of Huntington’s disease care management, and providing advice and information.

Working in partnership with Dumfries and Galloway NHS Health and Social Care teams, the service will also provide advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

We are looking for someone who is enthusiastic and motivated to have a positive influence on the quality of life for individuals and their families who are impacted by Huntington’s disease. Applicants should have the ability to work autonomously using their own initiative in this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent timekeeping and caseload management skills. Previous experience of working with Huntington’s disease is preferred but not essential. Our staff have been recruited from a variety of backgrounds in mental health, physical disability, social work, neurology and palliative care. Scottish Huntington’s Association will provide the opportunity for the successful candidate to acquire all the specialist knowledge required.

We invite applications from professionals who have a background in allied health, nursing or social work, and who have a valid, current professional qualification and membership with their professional body.

A substantial level of post-basic experience is desirable. Community-based practice knowledge and a clean current driving licence and use of a car is essential.

The successful candidate will be subject to an enhanced disclosure check.

Shortlist
This vacancy has now closed

Admin/Resource Worker

  • Part time
  • £18,938 – £20,259 pro-rata
  • Inverness, Highland (office and home-based)
  • Closing 9th September 2022

Scottish Huntington’s Association is the only organisation in Scotland dedicated exclusively to the care and support of families impacted by Huntington’s disease (HD), an incurable neurological condition with severe and complex physical, mental and cognitive symptoms.

Providing support to the HD Specialist in our Highland Service, the part-time Admin/Resource Worker role is an integral part of this service. The service provides care management, specialist assessment and emotional support to individuals and their families throughout the Highlands. The specialist service works in partnership with, and provides training and education to, local health and social care teams, professionals and voluntary agencies involved in all aspects of HD care.

Scottish Huntington’s Association invites applications from experienced administration workers with excellent communication, IT and interpersonal skills. The right candidate will have a competence of using databases and spreadsheets and a working knowledge of NHS IT applications and audio typing. You will be able to carry out basic budgetary tasks, manage HD Specialist diaries and take minutes of team meetings. We are looking for someone who is enthusiastic, motivated and has a great pride in the work they carry out.

Shortlist