Myeloma UK
Myeloma UK

Charity registered in Scotland SC026116

Myeloma UK is the only organisation in the UK dealing exclusively with myeloma – the second most common form of blood cancer. It originates in the bone marrow and currently affects around 17,500 people in the UK. Whilst treatable, myeloma is not yet curable. Our ultimate goal is to find a cure. We are dedicated to ensuring that patients get access to the right treatment at the right time, and to improving standards of treatment and care through research, education and awareness raising. We also provide a range of information and support services to patients, family and friends to help deal with a diagnosis of myeloma.

Current vacancies

Senior Policy Officer

  • Part time
  • £31,750 – £34,000 pro-rata
  • Edinburgh
  • Closing 2nd December 2021

About us

Myeloma UK is the only organisation in the UK dealing exclusively with the blood cancer myeloma and related conditions. We are committed to bringing together the best and brightest people to help us ensure that every patient has an empowered present and a hopeful future.

Our goal is to find a cure. We are dedicated to ensuring that patients get access to the right treatment at the right time, and to improving standards of treatment and care through research, education and awareness raising. We also provide a range of information and support services to patients, family, and friends to help deal with a diagnosis of myeloma.

About the role

As Senior Policy Officer you will be part of the Patient Advocacy team which makes sure that the voice of myeloma patients counts with decision makers. This role is one of three in the team. All Senior Policy Officers are expected to apply their skills flexibly across key policy areas for myeloma, with this role holding lead responsibility for our work on strengthening the Patient Voice. You will also work with colleagues in communications and fundraising to make sure our supporters and the wider myeloma community understand the positive impact we make.

You will review and analyse policy documents, engage with external stakeholders, draft position papers, reports, and responses to consultations, and will contribute to our work to get to the most effective new myeloma treatments approved on the NHS. As Patient Voice lead you will have special responsibility for working with and stewarding our Advocacy Partner Panel, a group of patients and carers who provide insight and support to our patient advocacy work.

About you

You will have experience of analysing, developing, and communicating complex policy issues, strong communication skills and ability to prioritise a fast moving and wide-ranging workload. Empathy and sensitivity is also needed to work closely with patients and their family and friends. The successful candidate will have the confidence and maturity to be a highly regarded ambassador for Myeloma UK.

Shortlist
Closed vacancies
This vacancy has now closed

Peer Programme Co-ordinator

  • Part time
  • £27,250 – £29,499 pro-rata
  • Edinburgh/flexible (currently working from home with hub-based office days)
  • Closing 26th July 2021

Myeloma UK is the only organisation in the UK dealing exclusively with the blood cancer myeloma and related conditions. We are committed to bringing together the best and brightest people to help us ensure that every patient has an empowered present and a hopeful future. We are now looking to appoint a Peer Programme Co-ordinator to join our Healthcare Advocacy Services Team.

To realise our long-term ambition to make myeloma history, we relentlessly pursue better outcomes for myeloma patients and patients with related conditions through a comprehensive early diagnosis programme, a unique research portfolio, our treatment access strategy, information and support services, and healthcare improvement services.

The role of Peer Programme Co-ordinator is to develop a new peer-to-peer service to provide information and support to anyone affected by myeloma and its related conditions and develop the new volunteer-led service that will sit alongside the current services offered by the Myeloma Information Specialist team. This service will use volunteers to provide bespoke support to people affected by myeloma and its related conditions and work on a referral basis.

The post holder will work with colleagues to ensure close communication and sharing of information across the organisation and report progress regularly to their line manager.

A minimum of one year’s experience of implementing volunteer/user involvement in service delivery, experience of recruiting, training, managing and supervising or mentoring a diverse range of staff or volunteers and experience of working in services which deliver positive outcomes for patients, carers and/or families is essential for this role. You will require an understanding of health and safety principles and practice and an understanding of the challenges that may arise from delivering digital/telephone support.

You will need excellent verbal and written communication skills along with a high level of organisational and IT skills, and the ability to understand and meet training and development needs of volunteers. Previous experience working in haematology, oncology, clinical research or healthcare, together with experience in information delivery over the telephone and in person would be an advantage for this role.

This is a part-time post for 28 hours per week worked over 4 days. The post is currently home based, with hub-based office days.

Shortlist
This vacancy has now closed

Clinical Practice Services Senior Projects Officer

  • Full time
  • £29,500
  • Edinburgh/flexible location
  • Closing 11th October 2021

Myeloma UK is the only organisation in the UK dealing exclusively with the blood cancer myeloma and related conditions. We are committed to bringing together the best and brightest people to help us ensure that every patient has an empowered present and a hopeful future. We currently have a vacancy for a Clinical Practice Services Senior Projects Officer to join our Healthcare Advocacy Services Team.

To realise our long-term ambition to make myeloma history, we relentlessly pursue better outcomes for myeloma patients and patients with related conditions through a comprehensive early diagnosis programme, a unique research portfolio, our treatment access strategy, information and support services, and healthcare improvement services.

The Clinical Service Excellence Programme (CSEP) is a Myeloma UK best practice accreditation programme for myeloma centres, developed in partnership with patients, family members and healthcare professionals. The role of Clinical Practice Services Senior Project Officer is to design, implement and evaluate a new CSEP strategy. The enhanced CSEP programme will work in close partnership with hospitals to support them in their role to achieve best practice in their care and support of myeloma patients and their families.

The role holder should be educated to degree level with experience in project and process administration and delivering pieces of work to time, budget and standards agreed. You will require to have an understanding of accreditation processes or other quality systems and general health and cancer knowledge, as well as experience of writing reports and giving presentations to different audiences, evidence of building effective relationships to deliver objectives, preparing action plans, business cases and marketing materials.

Excellent verbal and written communication skills at all levels both internally and externally, including presentation skills and the ability to research topics and identify key information are essential for these roles. You will need to be able to manage your own workload and have a high level of accuracy and attention to detail, as well as good IT skills and familiarity with short surveys and basic analysis of qualitative and quantitative data.

Previous experience of working with the NHS and/or with healthcare professionals to deliver projects, working in the charity sector, scientific or medical writing and working on cancer and/or myeloma-type projects would be an advantage for this role.

This role is a full-time, 3 year fixed term post which is currently home based, with hub-based office days, however we do consider flexibility on location.

Shortlist
This vacancy has now closed

Early Diagnosis Senior Projects Officer

  • Full time
  • £31,750 – £34,000
  • Edinburgh/flexible location
  • Closing 11th October 2021

Myeloma UK is the only organisation in the UK dealing exclusively with the blood cancer myeloma and related conditions. We are committed to bringing together the best and brightest people to help us ensure that every patient has an empowered present and a hopeful future. We currently have a vacancy for an Early Diagnosis Senior Projects Officer to join our Healthcare Advocacy Services Team.

To realise our long-term ambition to make myeloma history, we relentlessly pursue better outcomes for myeloma patients and patients with related conditions through a comprehensive early diagnosis programme, a unique research portfolio, our treatment access strategy, information and support services, and healthcare improvement services.

The Early Diagnosis Senior Projects Officer role provides a rewarding opportunity to contribute to the design, implementation and evaluation of a range of early diagnosis projects and initiatives directed towards, or with, healthcare professionals. The post holder will support healthcare professionals in their roles; facilitate best practice; improve awareness and education; elicit their perspectives and preferences and increase engagement with Myeloma UK.

The role holder should be educated to degree level with experience in delivering pieces of work to time, budget and to a high standard as well as experience in report writing for and presentation giving to different audiences and preparing action plans, business cases and marketing materials. You will require to understand the principles of effective communication and relationship building and an understanding of accreditation processes or other quality systems.

Excellent verbal and written communication skills at all levels both internally and externally, including presentation skills, strategic thinking and problem -solving skills and attention to detail are essential for this role. You will need to be self-motivated and able to work independently and creatively, have the ability to manage a wide range of tasks and work well under pressure and have a commitment and desire to make a difference for myeloma patients and their families.

Previous experience of working in the NHS and/or healthcare, working in the charity sector and working on cancer and/or myeloma type of projects would be an advantage for this role.

The role is a full-time, 1 year fixed term post which is currently home based, with hub-based office days, however we do consider flexibility on location.

Shortlist