Down's Syndrome Scotland
Down's Syndrome Scotland

Charity registered in Scotland SC011012

Down's Syndrome Scotland (DSS) is a parent led charity which was established in 1982.  We are the only charity in Scotland dedicated solely to supporting people with Down's syndrome (Ds) and their carers.  Our aims are that:

  • Children and adults with Ds, their parents and families, receive appropriate and timely information and support through all the ages and stages of their lives.
  • Public and professional attitudes to Ds will be more positive and inclusive.
  • Children and adults with Ds will be provided with choices and support to enable them to develop and reach their full social, physical and intellectual potential.

Current vacancies

Family Support Service Officer - North East

  • Part time
  • £25,388 – £28,103 pro-rata
  • Covering Aberdeen, Aberdeenshire, Angus, Dundee, Perth and Kinross (You must live within one of these areas, however ideally will live in or north of Dundee)
  • Closing 31st July 2019

We have an exciting opportunity for a committed individual to join our Family Support Service Team which offers information and support to families, individuals and professionals on all aspects of living with Down’s syndrome throughout all stages of life. This service is delivered through telephone and email support, individual 1:1 visits, ongoing casework support, the creation of publications, talks to carer groups and through the delivery of training to parents and professionals.

This position is homebased covering the North East region. The role requires a suitable provision to work from a home office and the use of a car is essential.

Closed vacancies
This vacancy has now closed

Top job! CEO

  • Full time
  • TBC
  • Edinburgh
  • Closing 3rd June 2019

The Organisation

Down’s Syndrome Scotland was established as a charity in 1982 and is the only organisation in Scotland dedicated solely to supporting people with Down’s syndrome, their relatives and carers. Our mission is “To support families and people with Down’s syndrome to reach their full potential by providing a range of services, influencing public policy and by changing attitudes”.

This mission is brought to life by a staff of 30 who are located around the country. In addition, groups of volunteers run nine branches around Scotland who offer an invaluable peer support network at local level.

The Role

The CEO will lead the organisation in its mission with an inclusive and empathic approach, achieving positive outcomes across the widest of stakeholder maps and never forgetting the reason for its existence.

Key Responsibilities:

  • Liaise with, support and motivate all staff and volunteers and secure their loyalty and commitment to the organisation’s aims, objectives and ambitions.
  • Seek out, develop and maintain effective working relationships with all relevant organisations and individuals to promote the work of the charity and facilitate the implementation of its strategic objectives.
  • Contribute to the development of, and be responsible for, the implementation and monitoring of the Board's strategic plan.
  • Continue to attract and retain members, ensuring that members’ views and concerns inform the activities of the organisation and in particular that the voices of those with Down’s syndrome have the opportunity to be heard.
  • Be a passionate and effective advocate in advancing the ambition to bring about cultural and legislative change so that meaningful activity is increasingly funded, prioritised, and delivered. This will include networking at senior level with like-minded charities, academic institutions, government, parliamentarians and local authority departments.
  • Report to and work closely with the Chair and Board of Trustees to ensure the Board’s involvement in policy decisions and to increase the overall status and visibility of the organisation throughout Scotland.
  • Liaise with the Board to develop and lead on the implementation of financial plans, including setting budgets, formulating income generation strategies and overseeing all fundraising activities.
  • Liaise with the Board to ensure that the overall governance structure, policies and procedures are appropriate and effective, taking remedial measures and implementing changes as necessary.

The Person

This person will have had a significant leadership role in a well-managed charity or other not for profit organisation.

There will be evidence of working effectively and empathically with a wide range of stakeholders, ideally including government, major funding organisations and crucially those whom the organisation exists to serve.

A track record of positive interaction with a governing body.

Demonstrable success in developing and motivating high performing teams and an admired reputation as an authentic leader.

Key attributes must include being:

  • a powerful and relaxed communicator; well able to perform an ambassadorial role
  • financially astute with an instinctive grasp of numbers and metrics
  • a natural leader with an ability to engage and inspire
  • of flexible intellect; well able to switch from the big picture to the management of fine detail
  • of unimpeachable integrity, someone who would instinctively subordinate their own interests to the needs of the charity.
This vacancy has now closed


  • Full time
  • £17,652
  • Edinburgh
  • Closing 12th June 2019

We are looking for an enthusiastic and motivated individual to join our busy and dynamic office. As the first point of contact in reception you must be able to deliver a professional image and accurately deal with a wide range of callers. You will ensure that staff within the organisation have the necessary administrative support, to be able to deliver a high quality service to people with Down’s syndrome and their families.