Scottish Huntington's Association
Scottish Huntington's Association

Charity registered in Scotland SC010985

Scottish Huntington’s Association (SHA) is a Scottish charity that was established by families living with Huntington’s disease (HD) in the late 1980s. Experiencing directly the dearth of services available to them, the organisation pursued the goal of setting up specialist family support services and this ultimately blossomed into the development of an extensive network of specialist services.


Closed vacancies
This vacancy has now closed

Specialist Youth Advisor

  • Full time
  • £28,694 – £30,399
  • North East Scotland-Including Highlands, Grampian and Tayside
  • Closing 25th June 2021

Are you motivated to make a positive change to the lives of children who are impacted by the devastating, neurological condition, Huntington’s disease within their family? Could you provide the support needed to cope with the unique and complex challenges they face each day? If so, an exciting opportunity has arisen to join Scottish Huntington’s Association (SHA) Youth Service as Specialist Youth Advisor supporting our vulnerable children and families throughout North/ East Scotland.

The Scottish Huntington’s Association (SHA) Youth Service works with children and young people aged 8 to 25, delivering a person-centred approach including psychoeducation, information and advice, peer support and respite opportunities.

We seek an exemplary individual to join us as a Specialist Youth Advisor for the North/East. This is a full time post: 36 hours per week with some out of hours and periodic weekend working. In addition to a competitive salary of £28,694 - £30,399, you will benefit from flexible working, a generous leave allowance of 37 days (25 days annual leave and 12 days public holidays) and a competitive pension.

As an SHA Specialist Youth Advisor, you will provide lifeline support for young people across the north east of Scotland, including Highlands, Grampian and Tayside. The Youth Service team manages a complex caseload while delivering one to one support sessions and developing group work sessions for ages 8-12, 13-17 and 18 years +. In addition, our Specialist Youth Advisors provide support to practitioners and deliver respite opportunities for our young people through, for example, residential trips and our annual summer camp.

A proven ability to build trusting relationships and empower children and young people is essential, and experience of child and adolescent mental health difficulties, young carer issues and child protection is advantageous.

You will work from home or from our base in the North East Scotland Regional Genetics Centre in Aberdeen, with regular travel throughout Highland, Grampian and Tayside. Home working remains in place as a result of Covid-19 restrictions. However, moving forward, as restrictions lift, team members will soon be spending some of their time at the workplace too and will be carrying out face to face visits.

Huntington’s disease (HD) is caused by a hereditary gene fault that leads to severe physical and psychological symptoms. There is no cure and its devastating impact is compounded further by the reality that each child of a parent with Huntington’s is at 50% risk of inheriting the disease.

SHA is the only charity in Scotland dedicated exclusively to supporting people whose lives are impacted by this devastating disease. It was founded by families for families, and you will find a values-led organisation, work alongside colleagues with unique insights and expertise, and discover how SHA continues to be inspired and driven by the families we serve.

Shortlist
This vacancy has now closed

Fundraising Officer

  • Full time or Part time
  • £24,379 – £26,963
  • Home working covering North East Scotland
  • Closing 27th September 2021

Are you motivated to make a positive change to families who are impacted by the devastating, neurological condition, Huntington’s disease? Do you have the skills and determination to meet and exceed fundraising goals alongside your colleagues?

If so, an opportunity has arisen to join Scottish Huntington’s Association (SHA) as a Fundraising Officer, responsible for building relationships with existing and potential new supporters in the North East of Scotland.

You will support our small and dedicated team in managing a portfolio of community, corporate and individual relationships whilst identifying prospective new contacts.

This post is being offered full time or part time, you will benefit from flexible working, a generous leave allowance of 37 days (25 days annual leave and 12 days public holidays) and a competitive pension.

You will have a proven ability to build trusting relationships and inspire further support towards the charity, as well as good research skills and record keeping.

You will be home-based with travel expected throughout your territory and occasionally to National Office in Paisley.

Huntington’s disease (HD) is caused by a hereditary gene fault that leads to severe physical and psychological symptoms. There is no cure and its devastating impact is compounded further by the reality that each child of a parent with Huntington’s is at 50% risk of inheriting the disease.

SHA is the only charity in Scotland dedicated exclusively to supporting people whose lives are impacted by this devastating disease. It was founded by families for families, and you will find a values-led organisation, work alongside colleagues with unique insights and expertise, and discover how SHA continues to be inspired and driven by the families we serve.

Shortlist