Scottish Huntington's Association
Scottish Huntington's Association

Charity registered in Scotland SC010985

Scottish Huntington’s Association (SHA) is a Scottish charity that was established by families living with Huntington’s disease (HD) in the late 1980s. Experiencing directly the dearth of services available to them, the organisation pursued the goal of setting up specialist family support services and this ultimately blossomed into the development of an extensive network of specialist services.


Current vacancies

Senior Huntington’s Disease Specialist - Grampian

  • Full time or Part time
  • £33,298 – £36,248
  • Clinical Genetics Centre, Ashgrove House Foresterhill, Aberdeen (All staff are currently home based until Covid-19 restrictions are lifted)
  • Closing 30th October 2020

Due to retirement we have a vacancy for a Senior Huntington’s Disease Specialist (SHDS) post within our Grampian service. The post will be a full time post. However, in order to accommodate a phased retirement plan and to allow a reasonable hand over period, the existing SHDS plans to reduce their hours to 18 hrs from 1st of January 2021 and work alongside the new post holder who will also work 18 hours until the end of February 2021. The new post holder will then become full time increasing hours to 36 hours per week.

This is an exciting opportunity to manage our existing Grampian service within our growing Scottish Charity and to offer specialist assessment, one to one emotional support, provide Huntington’s disease care management advice and information to families impacted by Huntington’s Disease (HD) and to all professionals or voluntary agencies involved in their care.

We are looking for someone who is enthusiastic, motivated and who will have a positive influence on the quality of life for individuals and their families who are impacted by HD. The successful candidate should have the ability to work autonomously using their own initiative in this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent timekeeping and caseload management skills. Previous experience of working with Huntington’s disease is preferred but not essential; most of our staff have a background in mental health, physical disability, social work, neurology or palliative care. We will provide you with all the specialist knowledge you need.

The Scottish Huntington’s Disease Association invites applications from professionals with a valid, current professional qualification in any of the specialities listed below

Nursing (1st level), Social Work, Occupational Therapy, Speech and Language. A substantial level of post-basic experience is desirable. Community based practice knowledge and a clean current driving licence and use of a car is essential.

The successful candidate will be subject to an enhanced disclosure.

Shortlist

Financial Wellbeing Officer – Energy Specialism

  • Full time
  • £29,242
  • East Central Scotland, initially homeworking
  • Closing 9th November 2020

An exciting opportunity to join our growing Scottish charity which offers specialist assessment, advice, information and support to families affected by Huntington’s disease (HD) and to all involved in their care.

We are recruiting for a Financial Wellbeing officer with a special interest in Energy Advice. With strong people skills, you will have three years of experience in a money advice, energy advice or welfare rights capacity. You will work directly with service users on welfare rights, debt management, energy advice and financial planning issues. You will have strong organisational skills, and be able to work to deadlines. You will work autonomously part of a small team of financial wellbeing staff situated across Scotland who together significantly improve the financial outcomes of families and work in an integrated way with a range of clinical and youth services to improve the quality of life of people living with Huntington’s disease.

A clean current driving licence and use of a car is essential.

The successful candidates will be subject to a Disclosure Scotland PVG Scheme check.

NB Due to current Covid-19 restrictions all staff are currently working from home. Interview and induction processes for successful candidates will take place via Microsoft Teams.

Shortlist
Closed vacancies
This vacancy has now closed

Huntington's Disease Specialist (Lothian Service)

  • Full time
  • £29,508 – £32,645
  • Western General Hospital, Edinburgh
  • Closing 9th February 2020

We have a new vacancy for a Huntington’s Disease Specialist. An exciting opportunity to join our existing team and growing Scottish charity which offers specialist assessment, advice, information and support to families affected by Huntington’s disease (HD) and professionals involved in their care.

Previous experience of working with Huntington’s disease is preferred but not essential; most of our staff have a background in mental health, physical disability, social work, neurology or palliative care. We will provide you with all the specialist knowledge you need. What we are looking for is someone who is enthusiastic and motivated and can have a positive impact on the quality of life of people living with the disease. You will also need to be able to work autonomously.

SHA invites applications from enthusiastic professionals to work autonomously in this challenging and innovative post. Candidates require a qualification in Nursing (1st level), Social Work, Occupational Therapy or other relevant field. A substantial level of post-basic experience is desirable. Community-based practice knowledge is essential. A clean current driving licence and use of a car is essential.

Shortlist
This vacancy has now closed

Team Leaders (2 posts)

  • Part time
  • £37,384 – £39,217 pro-rata
  • Working from home or one of SHA’s service locations
  • Closing 24th February 2020

Join Scottish Huntington’s Association (SHA) and you will transform the lives of families living with Huntington’s disease (HD).

SHA is world-leading in its advocacy and support for the HD community. As a Team Leader, you will have a key role in strengthening service delivery by supporting experienced HD specialists working with families and individuals to create uniquely personalised packages of care.

Ideally, we seek one Team Leader based in the North of Scotland and one in the South. Applications are therefore invited from across Scotland.

You will be an experienced health or social care professional with substantial experience in a community setting. You will have experience in supporting adults with a long-term condition. Knowledge of Huntington’s disease is desirable, but not essential. You will hold a recognised Nursing Social Work or Allied Health Professional Qualification. You will a minimum of three years’ experience supporting, coaching and managing staff.

We seek applicants who can work in partnership with other agencies and influence improvements in the care and support of people with Huntington’s disease. You should also have an understanding of the strategic context of neurology in Scotland.

Funding for this post is provided by Scottish Huntington’s Association, a values-driven organisation founded by families for families.

All posts are subject to a Disclosure Scotland PVG or Police Act check

SHA is a registered Charity (SC010985) and is committed to promoting equal opportunities in employment

Shortlist
This vacancy has now closed

Team Leaders (2 posts) home based

  • Part time
  • £37,384 – £39,217 pro-rata
  • Working from home or one of SHA’s service locations
  • Closing 24th February 2020

Join Scottish Huntington’s Association (SHA) and you will transform the lives of families living with Huntington’s disease (HD).

SHA is world-leading in its advocacy and support for the HD community. As a Team Leader, you will have a key role in strengthening service delivery by supporting experienced HD specialists working with families and individuals to create uniquely personalised packages of care.

Ideally, we seek one Team Leader based in the North of Scotland and one in the South. Applications are therefore invited from across Scotland.

You will be an experienced health or social care professional with substantial experience in a community setting. You will have experience in supporting adults with a long-term condition. Knowledge of Huntington’s disease is desirable, but not essential. You will hold a recognised Nursing Social Work or Allied Health Professional Qualification. You will a minimum of three years’ experience supporting, coaching and managing staff.

We seek applicants who can work in partnership with other agencies and influence improvements in the care and support of people with Huntington’s disease. You should also have an understanding of the strategic context of neurology in Scotland.

Funding for this post is provided by Scottish Huntington’s Association, a values-driven organisation founded by families for families.

All posts are subject to a Disclosure Scotland PVG or Police Act check

SHA is a registered Charity (SC010985) and is committed to promoting equal opportunities in employment

Shortlist
This vacancy has now closed

Trustee

  • Management Board
  • Unpaid
  • Home-based
  • Closing 13th March 2020

Join Scottish Huntington’s Association (SHA) and you will transform the lives of families living with Huntington’s disease (HD).

SHA is world-leading in its advocacy and support for the HD community. As a Trustee you will be able to shape the way the charity supports people living with Huntington’s disease now and work with other Trustees to meet future challenges. This is an exciting time for the HD community as researchers draw closer to potential treatments for the condition and the Board of Trustees will play a key role in preparing the charity.

The Board seek Trustees who have a range of professional skills in financial management and accounting, human resources, leadership and management, and legal services.

Informal enquiries are welcome and you should direct these to John Eden, CEO (0141 848 0308).

Shortlist
This vacancy has now closed

Top job! Chief Executive Officer

  • Full time
  • £55,000 – £58,000
  • National Office, Paisley
  • Closing 13th March 2020

A unique opportunity has arisen to join Scottish Huntington’s Association (SHA) and help transform the lives of families living with Huntington’s disease (HD).

As Chief Executive, you will work closely with the board of directors to lead in creating and driving the strategy that will enable the charity to continue to thrive, deliver and develop high quality services. You will ensure the financial, human resource and policy framework is in place to achieve this.

You will have the ability to capitalise on opportunities and meet the challenges of working across government and statutory agencies to ensure that families continue to receive the best care and access to emerging treatments and therapies.

You will have a professional management qualification or equivalent experience preferably in a community based health or social care setting.

We seek applicants who can create an open and transparent working culture, support and empower teams and build effective partnerships with a wide range of organisations and stakeholders.

Funding for this post is provided by Scottish Huntington’s Association, a values-driven organisation founded by families for families.

Shortlist
This vacancy has now closed

Huntington's Disease Specialist

  • Part time
  • £29,508 – £32,645 pro-rata
  • Clinical Genetics Centre, Ashgrove House Foresterhill, Aberdeen
  • Closing 23rd March 2020

Due to retirement we have a vacancy for a Huntington’s Disease Specialist post. An exciting opportunity to become part our existing Grampian team in a growing Scottish Charity which offers specialist assessment, one to one support, advice, and information to families impacted by Huntington’s Disease (HD) and all professionals involved in their care.

We are looking for someone who is enthusiastic, motivated and who will have a positive impact on the quality of life of families whose lives are impacted by HD. The successful candidate should have excellent working skills the ability to work autonomously using their own initiative this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent time and caseload management skills. Previous experience of working with Huntington’s disease is preferred but not essential; most of our staff have a background in mental health, physical disability, social work, neurology or palliative care. We will provide you with all the specialist knowledge you need.

The Scottish Huntington’s Disease Association invites applications from professionals with a valid, current professional qualification in any of the specialities listed below

Nursing (1st level), Social Work, Occupational Therapy, Speech and Language or other relevant field.

A substantial level of post-basic experience is desirable. Community based practice knowledge and a clean current driving licence and use of a car is essential.

The successful candidate will be subject to an enhanced disclosure.

Shortlist
This vacancy has now closed

Admin/Resource Worker

  • Part time
  • £18,030 – £19,287 pro-rata
  • Linwood, Paisley (Currently Home based due to Covid 19)
  • Closing 12th October 2020

We are currently looking to recruit a new Admin/Resource Worker on a 20 hour per week contract to provide administrative assistance to our Greater Glasgow & Clyde Huntington's Disease Service based in Business First, Burnbrae Road, Linwood. The post holder will be expected to provide support to the Senior Huntington's Disease Specialist (SHDS), and Huntington’s Disease Specialist (HDS) including the production of reports and the collation of information and resources as required by the service.

MAIN DUTIES AND RESPONSIBILITIES

  • To develop and maintain efficient administrative systems in support of the Glasgow & Clyde HD Specialist Service.
  • To assist SHA to promote awareness of the needs and challenges of HD families through the provision of information as guided by the SHDS.
  • To assist the SHDS and HDS to maintain accurate records and statistical data as required by the HD Specialist Service, using Windows-based computer systems including databases and spreadsheets.
  • To assist the SHDS and HDS to maintain accurate financial records as required by SHA.
  • To assist with the update of clinical activity and the input of clinical information to the SHA database as specified by the SHDS and HDS.
  • To assist in the organisation of local and national study days / training sessions. To assist with mailshots, audit and service satisfaction surveys.
  • To develop, in conjunction with the SHDS and HDS a, resource library of relevant, updated material relating to the HD client group.
  • To communicate appropriately with clients, professional staff and other relevant agencies.

This job description may be subject to review following discussion with the post holder and management of SHA.

Notes:

1. This job outline reflects the main tasks and responsibilities discharged by the post holder at the present time; however SHA reserves the right to alter or amend the content of this job outline to reflect changes to the job or services provided, while maintaining the overall character and level of responsibility for the post.

2. Notwithstanding any information or statement described within this job outline, all duties must be carried out in a way that promotes equality of opportunity, dignity and respect for all individuals and which is consistent with SHA’s stated policy on equal opportunities.

3. The successful candidate will be subject to a Disclosure Scotland Police Act check. Having previous convictions will not automatically disbar you from working at SHA (with the exception of offences against children or other vulnerable groups) and every case is taken on an individual basis.

4. The duties and responsibilities of this post will be undertaken in accordance with the policies of SHA.

Shortlist
This vacancy has now closed

Huntington's Disease Specialist

  • Part time
  • £30,098 pro-rata
  • SHA, Douglas Grant Resource Centre, Irvine Central Hospital, Kilwinning Road, Irvine, KA12 8SS
  • Closing 31st July 2020

We have a vacancy for a part time HD Specialist in Ayrshire. This is an exciting opportunity to become part our Ayrshire Huntington’s Disease Specialist team who offers specialist assessment, one to one emotional support and provides HD care management advice and information to all individuals and their families whose lives are impacted by Huntington’s Disease (HD) and work in partnership with H&SC teams and other all professionals or voluntary agencies involved in their care.

We are looking for someone who is enthusiastic, motivated and who will have a positive impact on the quality of life of families whose lives are impacted by HD. The successful candidate should have excellent community based working skills the ability to work autonomously using their own initiative in this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent time and caseload management skills. Previous experience of working with Huntington’s disease is preferred but not essential; most of our staff have a background in mental health, physical disability, social work, neurology or palliative care. We will provide you with all the specialist knowledge you need.

The Scottish Huntington’s Disease Association invites applications from professionals with a valid, current professional qualification in any of the specialities listed below

Nursing (1st level), Social Work, Occupational Therapy, Speech and Language or other relevant field.

A substantial level of post-basic experience is desirable. Community based practice knowledge and a clean current driving licence and use of a car is essential.

NB: Currently due to Covid- 19 all of our staff are working from home providing telephone support. It is hoped that restrictions will ease in the not too distant future, however until restrictions of Covid -19 are lifted staff will continue to work from home, using Microsoft teams and Near Me to support our clients undertaking only essential home/face to face visits this may also mean that all interviews and induction for successful candidates will take place via Microsoft teams.

The successful candidate will be subject to an enhanced disclosure.

Shortlist
This vacancy has now closed

Huntington’s Disease Specialist (Greater Glasgow & Clyde)

  • Full time
  • £30,098 – £33,298
  • Linwood, Paisley (Please note until COVID19 restrictions are lifted this role will be home based)
  • Closing 12th October 2020

We have a vacancy for a full-time HD Specialist Glasgow & Clyde. This is an exciting opportunity to become part our Glasgow & Clyde Huntington’s Disease Specialist team who offer specialist assessment, one to one emotional support and provide “Huntington’s disease care management, advice and information and training to all individuals and their families whose lives are impacted by Huntington’s Disease (HD) and work in partnership with H&SC teams and other all professionals or voluntary agencies involved in their care.

We are looking for someone who is enthusiastic, motivated and who will have a positive influence on the quality of life for individuals and their families impacted by HD. The successful candidate should be able to work autonomously using their own initiative in this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent time keeping and caseload management skills. Previous experience of working with Huntington’s disease is preferred but not essential; most of our staff have a background in mental health and physical disability, We will provide you with all the specialist knowledge you need.

The Scottish Huntington’s Association invites applications from HEALTH CARE PROFESSIONALS with a valid, current professional qualification.

A substantial level of post-basic experience is desirable. Community based practice knowledge and a clean current driving licence and use of a car is essential.

NB: Currently due to Covid-19 all of our staff are working from home providing telephone support, (a few essential face to face visits are now taking place). It is hoped that restrictions will ease in the not too distant future, however until government restrictions are lifted home working will continue. Interviews and induction processes for successful candidates will take place via Microsoft teams

The successful candidate will be subject to an enhanced disclosure check

The Huntington's Disease Specialist will be a member of the Greater Glasgow & Clyde Huntington’s disease specialist service based in Business First, Burnbrae Road, Linwood whilst also being part of the wider SHA multidisciplinary teams. The service covers all geographical areas within Greater Glasgow & Clyde. Operational areas of the service include the direct provision of support, advice, assessment and care management planning for individuals and their families whose lives are impacted by HD, promotion of a self-help model amongst families and increasing awareness of Huntington’s disease (HD) and raising awareness of the HD Care Framework ensuring equality of care across GG&C.

The primary function is to facilitate quality care for those with HD and their families through specialist assessment, planning, coordination, implementation and signposting to appropriate professionals/ agencies. The post holder will also provide up to date HD training sessions and information regarding current clinical trials and research to all H&SCP’s, other professional and voluntary bodies and family members. Caseloads can be complex and emotionally challenging but equally rewarding. In addition the HDS will work with the Senior HD Specialist and wider teams in supporting any new developments within the GG&C service and across the Adult Clinical Service.

MAIN DUTIES AND RESPONSIBILITIES

  • You must be a full member of a relevant professional body ( i.e social worker RN or allied professional) and qualified to degree level and work within the scope of registration guidelines.
  • To provide support to individuals and families affected by HD using a counseling approach
  • To provide support to existing SHA family groups, to act as a resource for group members, to assist with facilitation of new groups as appropriate, while recognizing the local family groups’ independence from the specialist services
  • To provide advice on positive management of HD to individuals, families and relevant professionals /care workers
  • To provide support to individuals and families affected by HD using a counselling approach
  • To liaise with other professionals to help individuals obtain the services to which they are entitled e.g. advocacy, respite, welfare rights community and health services

EDUCATION/TRAINING

  • To facilitate training at a local level and frequently participate in National training events
  • To promote awareness of the needs and challenges facing HD individuals, families and care providers, through the provision of education and information.
  • To participate in the production of educational literature concerning HD.
  • To maintain professional awareness of current trends and practices, through appropriate training courses, study days and workshops.

RESEARCH AND DEVELOPMENT

  • To initiate and/or participate in research projects related to HD
  • To become involved in the strategic planning and development of appropriate Health and Social Services
  • To assist with any new developments relevant to the Specialist Service function
  • To undertake surveys and audits as necessary client and professional satisfaction of the Specialist Service

POLICY/SERVICE DEVELOPMENT

  • To adhere to all company policies appropriate to own role. May at times be required to be responsible for policy development and propose changes in practice.

MANAGEMENT

  • To organise, manage and plan own caseload and diary
  • To be fully accountable for own professional actions; work not directly supervised
  • To undertake responsibility for the production of all reports concerning your work and activities of the service

ADMINISTRATION

  • To ensure the maintenance of full and accurate confidential records concerning the work of the HD services within their operational area.

Notes:

1. This job outline reflects the main tasks and responsibilities discharged by the post holder at the present time; however the SHA reserves the right to alter or amend the content of this job outline to reflect changes to the job or services provided, while maintaining the overall character and level of responsibility for the post.

2. Notwithstanding any information or statement described within this job outline, all duties must be carried out in a way that promotes equality of opportunity, dignity and respect for all individuals and which is consistent with the SHA’s stated policy on equal opportunities.

3. The successful candidate will be subject to a Disclosure Scotland PVG Scheme check. Having previous convictions will not automatically disbar you from working at the SHA (with the exception of offences against children or other vulnerable groups) and every case is taken on an individual basis.

4. The duties and responsibilities of this post will be undertaken in accordance with the policies of the SHA.

Shortlist